Resources for Families

Frontotemporal Dementia (FTD)

ALLFTD is an ongoing, observational clinical research study, seeking to learn more about Frontotemporal Lobar Degeneration (FTLD) and understand the difference in brain changes due to FTLD compared to normal aging.

The FTD Disorders Registry is a non-profit resource available for persons diagnosed, family members, caregivers, friends, clinicians, scientists, advocacy, and the biotech industry. The Registry aims to facilitate research and accelerate the development of treatments.

The Association for Frontotemporal Degeneration (AFTD) aims to improve the wuality of life of people affected by FTD and drive research to a cure by advancing research, awareness, support, education, and advocacy.

Alzheimer’s Disease (AD)

Youngtimers promotes education, community support, and research to improve the lives of individuals and families with early onset familial AD.

The Dominantly Inherited Alzheimer’s Network (DIAN) is a study aimed at identifying the biological changes that occur in the development of AD to improve early diagnosis and track progression of the disease.